CMV Support http://www.cmvsupport.org News, Information, Friendship and Support for all. Fri, 20 Jan 2012 10:01:39 +0000 en hourly 1 http://wordpress.org/?v=3.1.2 Dedication wall at Challenge:42 http://www.cmvsupport.org/2010/04/dedication-wall-at-challenge42/ http://www.cmvsupport.org/2010/04/dedication-wall-at-challenge42/#comments Sun, 11 Apr 2010 10:50:28 +0000 admin http://www.cmvsupport.org/site/?p=7 Hi All!
I am organising a marathon football match in aid of the UK CMV Association, where we will attempt to play for a World Record 42 hours; If you would like to contact me at victor@challenge42.co.uk we will dedicate a goal to someone of your choice who has been affected by CMV. If you are able to send a photo we will have a dedication wall.
We are hoping to raise over £5000 from this event.

If you would like to place a pledge or just see what’s going on, please visit http://www.challenge42.co.uk/
Many thanks
Victor & Carmen

]]> http://www.cmvsupport.org/2010/04/dedication-wall-at-challenge42/feed/ 0 Newsletter and More http://www.cmvsupport.org/2009/07/newsletter-and-more/ http://www.cmvsupport.org/2009/07/newsletter-and-more/#comments Tue, 07 Jul 2009 00:00:17 +0000 admin http://www.cmvsupport.org/site/?p=11 Hi everyone,
Download the latest newsletter from Carmen below.
Including the latest fundraising info.
(Filetype – PDF get the free reader from http://get.adobe.com/reader/)

CMV Newsletter May 2009

]]> http://www.cmvsupport.org/2009/07/newsletter-and-more/feed/ 0 July Newsletter http://www.cmvsupport.org/2009/07/july-newsletter/ http://www.cmvsupport.org/2009/07/july-newsletter/#comments Tue, 07 Jul 2009 00:00:02 +0000 admin http://www.cmvsupport.org/site/?p=26 Hi Everyone, please find below the latest newsletter from Carmen.
There won’t be another until September. If you have anything for inclusion in the next one, please let Carmen know by the end of August.

CMV-Newsletter-July-2009

]]> http://www.cmvsupport.org/2009/07/july-newsletter/feed/ 0 New CMV posters – Get yours now! http://www.cmvsupport.org/2009/02/new-cmv-posters-get-yours-now/ http://www.cmvsupport.org/2009/02/new-cmv-posters-get-yours-now/#comments Wed, 11 Feb 2009 00:00:34 +0000 admin http://www.cmvsupport.org/?p=66 Hi everyone, we have some great new awareness posters available. Check them out in the resources section here

]]> http://www.cmvsupport.org/2009/02/new-cmv-posters-get-yours-now/feed/ 0 Christmas Newsletter 2008 http://www.cmvsupport.org/2008/12/christmas-newsletter-2008/ http://www.cmvsupport.org/2008/12/christmas-newsletter-2008/#comments Sun, 14 Dec 2008 00:00:18 +0000 admin http://www.cmvsupport.org/site/?p=14 I hope you all don’t have too much “behaviour ” to deal with over Christmas, and if you do, I suggest a quiet room??? the attic????the shed???? the garage??? Warm coat, gloves, hot chocolate laced with brandy, box of chocs and new book??? !!!!

Wishing you all a happy, healthy Christmas and New Year

Here is our Christmas Newsletter:
CMV Newsletter Dec 2008 [MS WORD].

]]> http://www.cmvsupport.org/2008/12/christmas-newsletter-2008/feed/ 0 Anything But A Dog! http://www.cmvsupport.org/2008/11/anything-but-a-dog/ http://www.cmvsupport.org/2008/11/anything-but-a-dog/#comments Sat, 22 Nov 2008 00:00:28 +0000 admin http://www.cmvsupport.org/?p=73 “Anything But a Dog”, is written by Lisa Saunders, a friend of ours from the USA, whose daughter was born with CMV.

Suitable for, teens, adults and anyone who is interested in animals! It is the story of finding the perfect pet for a girl with CMV –

the true story of a big homeless canine and a little girl in a wheelchair. In a very amusing and moving story based around a series of dysfunctional pets, Lisa manages to put over the issues that many of our children deal with every day. A lovely way to spread to CMV Awareness!

Press and Media – additional information is Here.

Comments include: “Very touching, moving, personal; a joy to read. I laughed out loud and I cried.” Gail J Demmler-Harrison MD, Professor of Pediatrics, Director of the Congenital CMV Disease Registry and Research Program, Baylor College of Medicine, Houston, Texas
“I laughed. I cried. I found hope!” Carmen Burton, Coordinator, Congenital CMV Association UK and mother of Natalie
“Having walked the same road, I’ve ultimately shared the same unshakeable and deep, deep love a mother has for her CMV child.” Tracy McGinnis, Founder of the Brendan B. McGinnis Congenital CMV Foundation and mother of Brendan.

A special UK English version is now available and Lisa has kindly offered a donation from the sale of every book in the UK to our group. To order go to: http://www.unlimitedpublishing.com/dog

]]> http://www.cmvsupport.org/2008/11/anything-but-a-dog/feed/ 0 Newsletter – October 2008 http://www.cmvsupport.org/2008/10/newsletter-october-2008/ http://www.cmvsupport.org/2008/10/newsletter-october-2008/#comments Tue, 28 Oct 2008 00:00:52 +0000 admin http://www.cmvsupport.org/site/?p=18 An update from Carmen with news and requests for some important help.

Newsletter October 2008 [MS-WORD]

YOU can do a lot to help build up knowledge by completing the list of requirments document too →
Requirements doc [MS-WORD]

]]> http://www.cmvsupport.org/2008/10/newsletter-october-2008/feed/ 0 Fundraising Newsletter! http://www.cmvsupport.org/2008/10/fundraising-newsletter/ http://www.cmvsupport.org/2008/10/fundraising-newsletter/#comments Tue, 28 Oct 2008 00:00:39 +0000 admin http://www.cmvsupport.org/?p=75 As we are aiming to become a registered charity and fund-raising events are under-way, we feel this is a good opportunity to keep you posted on how we can raise those valuable funds.

In this first edition, catch up on past events and our plans for more.
fundraising_news1 [MS-WORD]

]]> http://www.cmvsupport.org/2008/10/fundraising-newsletter/feed/ 0 Newsletter – May 2008 http://www.cmvsupport.org/2008/05/newsletter-may-2008/ http://www.cmvsupport.org/2008/05/newsletter-may-2008/#comments Mon, 05 May 2008 00:00:27 +0000 admin http://www.cmvsupport.org/site/?p=23 Time for an update.. click the link below to download the latest news from Carmen.
CMV-Newsletter-May-2008 (MS-WORD)

]]> http://www.cmvsupport.org/2008/05/newsletter-may-2008/feed/ 0 Newsletter – February 2008 http://www.cmvsupport.org/2008/03/newsletter-february-2008/ http://www.cmvsupport.org/2008/03/newsletter-february-2008/#comments Sat, 01 Mar 2008 00:00:15 +0000 admin http://www.cmvsupport.org/?p=78 Hi folks, click the link below to get the latest news from Carmen…
CMV-Newsletter-February-2008 (MS-WORD)

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